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A Southern California native, I was on my third winter in Northern Arizona when I began having trouble breathing. Always very healthy so I attributed it to the 7000 feet elevation at which I lived, lack of snow shoveling stamina, and wearing layers of heavy clothes as the cause of tightness in my chest. When I couldn't take 5 steps without becoming exhausted and stopping to rest, I got scare...

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Anonymous | Caregiver
6/12/2023
Condition: Pulmonary Arterial Hypertension
Overall rating 1.0
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My mom was on this and her symptoms did not improve. She was on 5-6 liters of oxygen and could barely walk. She got more weak. Sadly she passed away from respiratory failure due to pah.

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Hopeful | 55-64 | On medication for 2 to less than 5 years | Patient
4/11/2016
Condition: Pulmonary Arterial Hypertension
Overall rating 4.0
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I live in a midwest univ. town, generally the air quality is very good. I have had congenital eisenmenger's syndrome, which probably has led to PAH in later years. Over the last few years, I had difficulty in walking more than 500 yards without getting out of breath, what to speak of gardening or cleaning around the house. About three years ago, I was referred to a pulmonologist at WashU, who ran several tests including V/Q, stress/walk tests and ultrasound, and cardiologist performed RHC etc. Pulmonologist prescribed Letairis, and Spirva Inhaler, and since then I have felt much better by God's Grace; and now I walk an average 7 miles daily, without getting out of breath. I also can take 1-2 flight of stairs without getting excessively out of breath. I take supplemental oxygen during the night. I have traveled overseas regularly and participated in very ardous and physically demanding activities. I have worked as an academic full-time all along. All of this has resulted in reinforced self-esteem and remain hopeful. Read More Read Less

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LAH | 55-64 | Female | On medication for 2 to less than 5 years | Patient
10/11/2009
Condition: Pulmonary Arterial Hypertension
Overall rating 5.0
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A Southern California native, I was on my third winter in Northern Arizona when I began having trouble breathing. Always very healthy so I attributed it to the 7000 feet elevation at which I lived, lack of snow shoveling stamina, and wearing layers of heavy clothes as the cause of tightness in my chest. When I couldn't take 5 steps without becoming exhausted and stopping to rest, I got scared and went to the doctor. MANY doctors and tests later and very near death, I was referred to a Pulmonary specialist at UCSD. I made the trip hooked up to oxygen but my condition improved so much at the lower elevation, that within 24 hours I was off oxygen and have not needed it since. I was diagnosed with Class 2 PAH and was selected to participate in a clinical study and research of a new drug. Four years later, the drug Letairis was approved. Pulmonary Arterial Hypertension is a disease that I will always have. I now live very active in the desert, elevation 245 feet, I feel great and I take Letairis daily. I'm grateful that with this medication I can live a normal and active life and feel very proud to have participated in the research of Letairis. Thank you Read More Read Less

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