User Reviews for CellCept oral

I absolutely hate this drug! I have systemic lupus erythematosis and have been on plaquinil which has helped a little. I did chemo with cytoxin which kind of helped but finished that treatment sept. 2010. I added cellcept to give a good push in the right direction but after only 4 days I feel much worse. It's a hassle to make sure to have a full stomache to take it because otherwise I almost throw up. I'm already way weak and this has made me weaker, given me more joint pain than I already have, body aches, chills, hot flashes, constipation, negative mood changes, insomnia, and some itchiness. All of these side-effects are listed in my research on this drug. I stopped taking it today and still feel side-effects, hopefully they will go away soon. The trend I notice in the reviews on different sites about this drug is that there's an 8 out of 10 chance you will have a good experience with it. I guess I'm part of that unfortunate 2 out of 10. Try at your own risk!Read More Read Less

I have had very severe psoriasis on my hands for about a year. Taking 3000mg. a day. It has helped very much. So far I have noticed only minor side effects. Some sleeplessness and a constant sinus problem. Dont really know what else to expect but playing a waiting game.

I have chronic ideopathic urticaria. You should know that at my maximum dosage my sertraline quit working and I began to suffer severe depression. Also, my blood sugar is high now. Hives seem to respond at 1000MG twice daily. But I now have abcesses forming in many places on my body. These are not pimples, they have a thickish white infected top not squeezable like a pimple. I know that sounds gross but at least you don't have those. I do have some clumsiness, not sure what that's from.

I am just wanting to add a little more to my post from back in May. I was newly diagnosed with Wegeners and had started on Cell Cept. Well I had no side effects from it, but as it turns out it is not a good maintenence drug. here it is August and I have been hospitalized two times in the past 3 weeks with flair ups of my ilness. So now we are going to try Rituxan (scary) and see what to do after that.

I have been taking Cellcept for pain associated with polymiositis. However, I have developed a severe cough.

I have been on 2000 mg of this drug since Oct. 2010 for my lungs. Hypersensitivity Pneumonitis, which the doctors think was caused by my 3 cockatiels. Once I started taking this drug I started feeling better and not as short of breath. Still taking it and return to Stanford Hospital, Palo Alto, CA in Oct. 2011 for another check up.

I have been taking Cellcept for 2 years; for Scleroderma with ILD (lung disease). Currently taking 1500 mg BID. Also taking prednisone; now down to 15mg from 60 mg. My Drs are weaning me off the prednisone due to side effects from being on it for 3 yrs. After reading comments from others, I'm thinking I have more side effects related to Cellcept than I previously thought. I have a lot of pain in my feet, hair loss, insomnia, diarrhea and slow wound healing. I'm extremely careful about being around anyone who is sick and I wash my hands a lot to prevent getting viruses, etc.Read More Read Less

I was Diagnosed with Wegners Granulanoma (vasculitis) last year July 1,2010. Started with Cytoxan for three months, 60 of prednison a day for three months, then went down to nothing. After the three months of Cytoxan I went to Imuran. 50mg a day for to weeks (no side effects) then 100 for 2 weeks ( slight nausia) then 150 a day and that lasted 4 days. Could not tolerate. went back to 50 to see if i could start over. January I had a relapes and had to start my Cytoxan again and prednison. I am down to 5 mg a day and if my lab work is good today I will now start the celcept. i am a little nervous to start a new medicine. But HOPEFULLY it will keep me in remission! Read More Read Less

I have had Lupus for more than 20 yrs. I was taken off Plaquenil which was very effective in controlling the lupus because of severe eye side effects. Began treatment with Cellcept in Feb 2010 and it seemed to be very effective in treating my symptoms. I was taking 1000mg per day with no side effects. In fact I hadn't felt that well in many, many years and was pleased with the drug. But by Dec. 2010 I suddenly became very sick with 105* fever and severe back pain. Both with no known cause. After a few days in the hospital I was diagnosed with sepsis. I had no obvious infection to lead to sepsis. In fact the morning of when I was taken to the hospital until an hour before I fell sick I felt great. I had a staph infection and staph is all over everyone's skin. It must have found a small cut to enter and my suppressed immune system lead to the sepsis. It was a very scary situation. I was hospitalized for 9 days and went home with a port for continuing the antibiotics for 4 weeks X 4 times a day. I visit my Rheumatologist in April to decide what treatment I will try next. I havbe a feeling it may still by Cellcept. But I am terrified now of what may happen. I read that cellcept caused sepsis in 2 % of users. I was extremely healthy except for the lupus before this incident - other than lupus no other health problems. Was very active, walked 3 miles everyday plus lots of other activities and responsibilities. It has been 7 weeeks and I am still having problems from the sepsis.Read More Read Less

I find that I am extremely fatigued all the time, have trouble sleeping and have recently developed some stomach trouble.

I LIKE TO LOWER THE DOSE to 1500mg x2 a day i started at 2500x a day then i asked my dr for a lower dose after he ck the blood work he took me to 1000mg x 2 a dayothere wise its good

I take 2000mg cellcept daily. I have systemic scleroderma I have lung fibrosis, GI problems,reynolds, and have recently developed bladder problems. I have been taking cellcept for nearly 3 years. So far my lung function has stabelized which is great but i suffer from alot of infections, severe joint and muscle pain and fatigue. I dont know if this is from my disease or side effects fom cellcept my doctor gives me no answers. Anyone out there got any idea's.

This medication gives me diarrhea really bad and makes me bloated along with a lot of gas.

I prefer the Brand name CellCept over the generic Mycophenelate Mofetil. It seems to work better for me. One bad side effect is that the higher my dose of CellCept, the more prone I am to getting UTI's (urinary tract infections)

I have myasthenia gravis and do see a quick change in my mg. I am on 1000mg at this time and will go up to 2000mg.

I was just started on CellCept about 4 weeks ago and had a lot of the side effects I was throwing up and dehydrated. I also have the swelling of he legs and ankles I look like I have canckales... It seems to be working ok not long enough to tell I am up to the theraputic does of 2000mg. I recently though have had a spike in my Blood Pressure and have been having the hot and cold sweats, I do not know if anyone else has had this issue. For those that posted about the cost I called Rosche the maker of the drug, they were very nice took my information insurance and all called my insurance company to see if and what they would cover, and then 4 days later I recieved a Fed Ex pack and Rosche sent me a free supply for 60 days even though my Insurance will pay, so please after me working in helthcare so long and doind clinical trials call the maker of the drug they are more than willing to help even if you have a high copay, if anyone needs help with this just post it on here I will check it! Read More Read Less

This drug is very expensive and unaffordable if you have insurance or no insurance. Which I have no insurance so its even higher