Show ratings & reviews for

4.3 Overall Rating

Effectiveness

Ease of Use

Satisfaction

Shared reviews and ratings

Claremac | 35-44 | Female | On medication for less than 1 month | Caregiver
7/27/2015
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

My daughter had a liver transplant in 2011, in 2014 she was diagnosed with steroid resistant rejection. In early 2015 her Drs at PMH Perth WA, decided that due to such a poor quality of life raised liver enzymes and bilirubin 200 and shocking pruritis they would try Basiliximab. This had never been administered at the hospital before to a child, so a protocol was written. My daughter had the infusion day 1 and day 5 with no notable side effects. She was commenced on Valgancyclovir and Bactrim for her protection (her liver is CMV +ve) About 5 weeks later her enzymes started a downward shift, as did her bilirubin. This plateaued and so she received another one off infusion 1 month later. This didn't appear to have much effect until 4 months later. My daughters bilirubin is 23, her enzymes have fallen to almost normal except for her GGT which is still high, her Pruritis has improved and the last 2 days she has not been itchy at all (she was started on Colesevelam 6 weeks ago), she is sleeping at night, and able to go to school full time. This has to be the Basiliximab working, we were thinking it was the Colesevelam making the difference, but lowering bilirubin and liver enzymes is not part of its actions from what i have read. So it must be the Basiliximab working. She is currently on the transplant list for a new Liver, but as she is at the moment she has improved so much I doubt she would meet the criteria.Read More Read Less

Report this postFill 3Created with Sketch.

IMPORTANT INFORMATION ABOUT USER-GENERATED CONTENT ON WEBMD

The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions.

Read More